2014d-308 autobiography bereavement bio026000hea039060fam014000 bioethik biography chronicallyill chronicdisease cysticfibrosis cysticfibrosisinchildren death diagnosis diseases ethics family familyrelations familyrelationships fitness france genetic genetictesting governmentpolicy grief health healthpolicy healthsmith humangenetik mallory medicalgenetics medicalscreening mukoviszidose neonatalscreening neugeborenes newborninfants patients personalmemoirs politik relationships screening unitedstates